Saturday, 24 August 2013

Never Forget

My dad always told me never to beg, never beg for money but, more importantly, never beg for friendship or love.  He was a great man.

Let me introduce you to John Thomas Harris, known to my mum as H and his friends as Harris, my handsome dad:
He was a quiet man who loved his family more than anything.  His work was physical, he was a scaffolder who then went on to build film sets, he was very creative and artistic.  He had an incredible sense of humour.  He once had to give a speech at a function for his boss, he was so nervous but got through it by using his humour, the comedian Jimmy Jones got on stage after my dad and said "How the hell do I follow that!".
My dad was intelligent and had a very quick mind.  I wouldn't go in the sea once because I'd heard a report of giant jellyfish in the water.  Without missing a beat my dad said "No, what you saw was an advert for Rowntrees that said nobody's jellies are bigger than our jellies" I believed him and went swimming, he'd reassured me. He would get excited about things, Christmas and a surprise for someone in the family would always get him excited, I get that from him.
He loved to do a BBQ and was an amazing cook.  There was the time in France when we didn't have a BBQ so he "borrowed" one from the chief of police for France, in the end he made one from an old shopping trolley but that's another story for another time. He made the most amazing pastry and his apple pies were always special. When he cooked he liked to prepare and have all of the ingredients chopped and grated and in their own little bowls :)
Dad was very sporting, he played football for the county when he was younger, Monday night was always squash night and he loved to swim.  I recall my dad going for long sea swims when we were on holiday, I also remember with pride how over the years he saved the lives of 7 people who were in trouble at sea, one of them a lifeguard!

Then Alzheimer's struck, my dad was 57, just 57 years old!  I remember many times during his illness that I wished someone could save him. As a family, united, we went on a 12 year journey with this terrible disease.
At the start of his illness Maddie had the best of grandads.  Maddie isn't the name on her birth certificate, it's the name he gave her.  From the moment she was born he always called her his little madam and in time it evolved to Maddie and it stuck.
He was always there for her, ready to play any silly game that she made up and it was great to see them playing, wonderful that he had the time to play with her.  But that was selfish because the only reason he had the time was because his brain cells were dying.  His other grandchildren weren't so lucky, some of them never knew him but he lives on in our hearts like the legend he was and all of his grandchildren hear the stories of grandad John.
It all started off with coffee, there were a couple of times early in the morning when he poured boiling water in to the coffee jar instead of his cup.  At the time it was annoying and we thought he was just tired but then other changes came along, subtle changes, and the doctors diagnosed Alzheimer's.
Unlike cancer, when you are told you have Alzheimer's there are no options, there is no hope.  They can give you drugs that will slow it down but they only turn you into a zombie with very little normal function. My mum soon stopped giving him the drugs that took away any quality of life.
Alzheimer's has stages, it is like watching someones life in reverse.  My dad had been in Germany for his National Service and spoke the language fluently.  I remember the day my mum called me to let me know that, after not saying a word for 6 months, my dad was talking again, the only trouble was he was talking German!
Alzheimer's sufferers go through a stage were they can walk for miles and miles.  Police have suggested that sufferers are fitted with GPS.  This caused a bit of uproar amongst the do gooders but until you get the heart stopping call that says "Dad's manged to get out of the front door and I can't find him" then you don't realise what a fantastic idea this is. It is like a toddler getting out of the house with no sense of direction and no idea of the dangers of crossing a road.

Alzheimer's made the whole family even closer, we were all there to help my mum so that my dad didn't have to go in a home. It also isolated us and we would grieve and shed our tears in private. We also learnt a lot of lessons.

People with Alzheimer's aren't old and they don't just sit in a corner forgetting the small things, they forget everything. They forget how to hold a glass, how to feed themselves, they have to wear a nappy, they forget how to use their arms, they forget how to sit down and when you do get them sitting down they forget how to stand up, their muscles cease up and they forget how to walk.

But then it gets worse, they forget how to chew then they forget how to swallow, you can't get them to eat, they can't eat, they waste away.  They don't forget how to cry though and it breaks your heart.

Close friends turn their backs and disappear from your lives, people who had been friends with my dad for over 40 years just stopped coming to see him.

We learnt how strong my mum is, how much fight she has in her, how much she loved my dad.
Dad saw all but one of us married, walked his 3 daughters down the aisle and stood at the side of one of his sons.  Twelve years after we were introduced to Alzheimer's and five short years after this beautiful photo was taken of my dad looking so proud and happy at Jemma's wedding this photo was taken:
Five years for him to look like he'd aged 20, for him to stop walking, for him to stop moving his arms, for the life to have gone from his eyes and then to finally pass away.

I still see reminders of my dad all the time and they always make me think of him and smile.  I know that he is always with me.  I see him in my brothers and in my nephews but I wish he was here to see it too.  His many grandchildren would amaze him and he would cherish them all.

















On the 22nd of September me, my brothers and my sisters are doing a 10K Memory Walk to raise money for Alzheimer's.  We want to raise money so that, in the future, if someone is diagnosed with Alzheimer's they are offered a cure, a chance to live their life out in full, so that they can be offered hope.

I would walk this 10K bare foot over hot coals if it meant that my dad would be at the finish line and I could see him healthy and well but I know that won't happen so I'll wear my shoes and socks and do it in the hope a cure can be found.

Now I know dad told me not to beg but, just this once, please, if you can, visit my Just Giving page and make a donation.  It doesn't matter how big or small, whatever is raised will help another family that is suffering because of this terrible disease.

Today would have been my dad's birthday, it's the fifth one he's not been with us but he is not for one second forgotten. If you feel like giving a posthumous birthday present then maybe you would be kind enough to share this blog post with your lovely followers.

I will keep you updated on my fundraising and would like to thank you from the bottom of my heart for reading this post.

Happy birthday dad, love and miss you always.

Take care
Jo xx

17 comments:

Nicola Mathie said...

Wow Jo that is so lovely just sobbed my heart out in epsom high street xxxxx

miss pinkers said...

I saw this post on Facebook and I don't know you, or your Dad. It just so happened that I had a friends request last night from someone I haven't seen or heard from in many years. I had been talking for most of the evening to my sister-in-law who's step mum was diagnosed with Alzheimers about 2 years ago.
We sat and talked about it all for hours and then after she left I sat at the computer and, as I said, got a friends request.
It was that friend who came up in my newsfeed as posting a comment on this link and I saw the title, "Never Forget" and it made me flashback to the conversation I was having last night. I had no idea the story was about Alzheimers, it really was just the title that drew me in.
I read through it all slowly, pausing at each photo to study this amazing man which you wrote of. By the end of the page I was wiping tears away and finding myself going back to study the photos once more.
It's a heartbreaking story written with such love and an underlying happiness of the memories that he left with you.
I absolutely applaud you and your family and will be, without fail, giving to your cause.
I hope that the walk goes fantastically and that you and your family recall lots of memories to keep you smiling along the journey.

My simple life said...

What a heatbreaking and beautiful story love, have donated to you, well done for doing this.

Jo.C said...

Well done, a heart breaking but very thought provoking post. A real tribute to your Dad. Have tears in my eyes. Good on you and good luck xx

Jane said...

having had members of my family with this terrible disease my heart goes out to you, for it to strike someone so young makes it even more tragic xx

Sandra said...

I hope you know how proud I am to have you as my friend and to know you're doing this for such an amazing cause.

I know it must have been heartbreaking for you to write this post, but its truly beautiful. xxx

Jay Carter said...

Jo - What an absolutely wonderful tribute to your Dad. I was fortunate to have known him almost as long as you! A super, super Dad and a fantastic family man. xx

Sandra said...

What a moving post Jo and written so eloquently. Your dad sounds like an amazing man who was obviously loved very much by his family.

Fiona@Staring at the Sea said...

Beautifully written and so very moving Jo xx

Julesmichelle said...

Jo, that was probably the most moving blog post I have ever read and I am sat here in tears. Your love for your Dad and your family is so evident. off to sponsor you now xx

Julesmichelle said...

Jo, that was probably the most moving blog post I have ever read and I am sat here in tears. Your love for your Dad and your family is so evident. off to sponsor you now xx

Sian said...

What a powerful post. It feels a bit strange to say that I enjoyed every word, but I hope you know what I mean..

I'll be thinking of you on the day because it's my sister's birthday, so it will be easy to remember another family doing something together and I hope you raise a ton of money!

susibee said...

I know exactly how you feel, my Mum had Alzheimers and died a couple of years ago and my MIL also has this awful disease so we are still going through it.

You are doing something special for an amazing cause, well done.

Lisa-Jane said...

He sounds like a fantastic person and I'm so sorry that he was taken from you so soon. Good luck with the walk and the fundraising. Its a terrible thing with little support and knowledge. Best wishes to you all xx

Deb @ Paper Turtle said...

Oh my goodness, Jo, this is such an amazing tribute to your dad. Gosh, he would be so proud of you. He sounds like he was an amazing man - what a lovely spirit he had. I love that you are reaching out and asking for help to fight this horrible disease. My daughter and I are going to be walking in the ovarian cancer walk in September as well, in honor of my mom. All the best to you, Jo. xo

Alison said...

I have just seen this, Jo....what a moving tribute to your dad. my Gran had Alzheimer's so I know what an awful disease it is and how it affects all those involved...am off to make a contribution!
Alison xx

S said...

Oh my, how sad to be struck so young with that disease and to have struggled for so long. Your post is a lovely tribute - obviously written with so much love and heartbreak. Bless you.